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Chronic Lung Disease: Your Emotional Well-Being

Chronic lung disease may include COPD (chronic obstructive pulmonary disease), which is chronic bronchitis and emphysema. It may also include pulmonary fibrosis and sarcoidosis and other long-term respiratory conditions. When you have chronic lung disease, it’s normal to have good days and bad days. Take care of yourself emotionally, as well as physically. You can take steps to feel more in control of your health and your situation. Remember that your healthcare team, family, and friends are there to help. Don’t be afraid to share your feelings and ask for support.

Staying in control

Chronic lung disease can affect your independence. This can lead to feelings of anger, frustration, anxiety, and depression. The following may help you feel more in control of your life:

  • Keep doing what you enjoy.  When you’re planning your day, make sure to include some activities that are just for fun.

  • Stay involved with friends and family.  This may mean inviting people over to your house more often. Talk about your feelings with people close to you.

  • Learn as much as you can about your lung disease.  The more you know, the more control you’ll have. Share what you learn with people close to you. Bring loved ones with you to the health appointments. And let them know how they can help with treatment.

  • Follow your treatment plan.  Accept that even if you do everything you’re supposed to, you’ll still have ups and downs.

  • Take an active role in your treatment.  Talk to your healthcare provider if you have any concerns or questions. New treatments are always being developed. If current treatment isn’t meeting your needs, other choices may be available.

  • Save your energy. The way you use your body during a task can help you have more energy. Do activities slowly. Rushing through activities uses more energy. It can also increase shortness of breath. Sit to dress and to do other daily tasks such as brushing your teeth. Use a cart with wheels to move food, laundry, and other items around your house. Keep the things you use often at waist level, so you can get them easily.

  • Don’t be afraid to be active. Being active may make you short of breath. Even so, it's good for your lungs. Exercise can strengthen the muscles that help you breathe. Ask your provider about safe exercises for you.

  • Join pulmonary rehab. Community-based and home-based programs work as well as hospital-based programs as long as they are as often and as intense. Standard home-based programs help shortness of breath in people with COPD. Supervised, traditional pulmonary rehab remains the best option for people with COPD. These programs help manage your disease, breathing methods, exercise, support, and counseling. To find one, ask your provider or call your local hospital. Also talk with your healthcare provider about which rehab or self-management program is best for you.

Staying intimate with your partner

Even if you use oxygen, having chronic lung disease doesn’t mean you have to give up being intimate. Keep the following in mind:

  • You and your partner may both feel better if you talk about your feelings and concerns. Don’t be afraid to talk with your healthcare provider, too.

  • Sex may feel better if you wait until you’re rested. Use positions that need less energy, such as lying on your side or your back.

  • Prepare for sex as you would for exercise. Use your inhaler beforehand if one has been prescribed. Clear your lungs of mucus if needed. If you use oxygen, set the flow rate for activity.

  • It’s OK if you don’t feel like having sex. You can show your love in other ways. Try hugging, giving a backrub, or just telling your partner how much you care.

 

Having chronic lung disease doesn’t mean you have to feel bad all the time. Talk with your healthcare provider or a therapist if you feel worthless or helpless, or are thinking about suicide. These are warning signs of depression. People with COPD are more likely to commit suicide than people without COPD. Treatment can help you feel better. When depression is under control, your overall health may also improve.

Online Medical Reviewer: Alan J Blaivas DO
Online Medical Reviewer: Daphne Pierce-Smith RN MSN CCRC
Online Medical Reviewer: John Hanrahan MD
Date Last Reviewed: 9/1/2018
© 2000-2020 The StayWell Company, LLC. 800 Township Line Road, Yardley, PA 19067. All rights reserved. This information is not intended as a substitute for professional medical care. Always follow your healthcare professional's instructions.
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